About HNRNPU Disorder
HNRNPU-related disorder is a rare genetic condition caused by changes in the HNRNPU gene, which plays an important role in how the brain and body develop and function. Children with this disorder may experience developmental delays, low muscle tone, seizures, heart defects and differences in learning or communication abilities. Because it is so rare, every child’s journey can look a little different. With ongoing research and community support, families affected by HNRNPU disorder are helping to raise awareness, improve understanding, and move closer to better treatments and therapies for the future.
TATE'S STORY
Tate’s journey began with strength and resilience from the very start. Tate spent most of his first year of life at Children’s Nebraska, where he underwent numerous procedures, including open-heart surgery,. Despite the challenges, his spirit and smile inspired everyone around him. After months of testing and care from a dedicated medical team, Tate was eventually diagnosed with HNRNPU-related disorder. He continues to battle seizures and works hard in therapy to gain strength with movement and speech. Though the road has not been easy, Tate continues to shine brightly and remind everyone who knows him of the power of hope, love, and community. Tate's family has worked tirelessly to bring awareness to this disorder and raise funds for continued research to find a cure for this disorder.
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